It's the Little Things

So a crazy thing happened to me just now.

I pooped.

Like a normal one.

I was happy and relieved, quickly realising how sad it was that I was reacting this way. Having a normal BM is not something someone gets excited about – it’s just (or should be) a normal part of life. But for me and other people living with Crohn’s or other IBS symptoms, a normal BM can make our day when our digestive systems are down.

So why get excited about a poo?

It’s probably because I haven’t passed something that normal since last Wednesday. I’m hoping this is a sign that I’m going to get better and whatever it was that was causing my digestive issues all these problems this past week has gone.

I’m cautiously optimistic about my body at the moment. I’m still terrified I’m going to have stomach pains tonight and end up spewing my guts up when I awake.

But I’m just going to take everything day by day and see how it goes.

***

Just got a call from my GI. After having a blood test yesterday, my results are in.

*drumroll please*

Unusual liver reading.

*round of applause*

This could be the cause of my digestive issues – maybe, maybe not. But it means more blood tests...great.

Welcome to Crohnie living.

Things can Change so Quickly

In the simplest term I can put it; I’m scared.

Since Wednesday (5 days now) I’ve had the worst experiences known to me in Crohn’s kind.

**TMI SERVICE ANNOUNCEMENT** do not read ahead if squirmish

On Tuesday night I had the worst stomach ache. Then Wednesday morning, I woke to the sudden need to go to the bathroom. I had some of the worst diarrhoea I have ever experienced. It was endoscopy prep medication bad.

That day I ate very little and wasn’t hungry. Diarrhoea stopped around lunch time. Then around dinner time, my stomach began to hurt again and continued till I fell asleep. In the morning I woke with the sudden bathroom realisation again, and the cycle continued.

It’s been that way ever since.

Unfortunately, I thought it was just a stomach bug and didn’t ring my GI sooner. Then it was the weekend, so I can’t ring them till tomorrow.

In five days my weight has gone from 45.5 kilos, to 41.3. HELP!

I just have to sit tight till I can ring someone soon.

I’m scared, exhausted – like, even writing this is tiring me out – I’ve been moody and anti-social.

In this case, things turned on a dime. I was going really well, no problems, then in days my health just deteriorated. I don’t know the cause. The only different thing I have done lately is add 25mg to one of my tablets (on drs orders, of course) but I feel like something so small couldn’t cause this huge change. Besides, the tablets are supposed to make me better, not worse. Adding should improve my situation.

It’s not yet been a week, but I feel like this change has already affected my life greatly. I have been missing out on work – it’s already been 4 shifts I’ve had to call in sick. I’ve stopped talking to friends and replying to things about going out – I don’t want to burden them with what’s been happening and bring them down. And I’ve been lying to my family about how much I weigh. They were upset when they thought I weighed 43 kilos – I can’t tell them it’s actually 41 now.

My worst case scenario is someone is going to tell me to go to hospital; I see that happening tomorrow when I ring the GI. But I don’t want to think about that, and hope they can offer me something (advice, help) that will hopefully get me back on track as quickly as this all started.

Things have just changed so quickly. It reminds me of my first major flare-up. And I don’t want to go down that path of being sick for months, ever again. 

My 2016 Post.

I haven't written one post in 2016. My bad. 
A positive reason for this though is my condition is (mostly) being handled. So there hasn't been a need to write anything. 
I've also been busy this year: I did my honours project, I've been going to work, I go out with friends, and even have been going on dates in 2016 - that's cool. 
I'm still on Prednisone - didn't think I could be on it for so long, but here we still are. 
And I'm also taking Puri-Nethol - which last week got upped, so now I'm taking even more of it. 
My dosage got bigger after I saw the GI last week. I won't lie; I was pretty disappointed when I found out that my Puri-Nethol dosage was getting bigger and not stopping all medication like I hoped. But as long as I'm mostly healthy that's the important thing, right? 
In 2016 I did my second endoscopy/colonoscopy in my life - maybe a post on that to come later...or on second thoughts, maybe not. 
I'm STILL trying to gain weight - at least I'm not losing anymore so that's a positive. 
I received news that one of my friends might have IBD issues - I'm hoping they'll be OK once they have their procedure done. 
Anyway, sorry I haven't been around. But then I'm happy that I'm healthy-ish. I'm sure I'll be posting more...did I ever tell you about my holiday? Ok, I should do that if I haven't! 

Hope everyone has been well.