I'll be honest. I'm lying on the floor of my bedroom, my
laptop in front of me. My eyes are puffy, red and the tears are still falling
down my face.
The best part of being 21 is the social life; the parties,
the coffees, sleepovers, movie nights and lunch catch-ups.
Being diagnosed with Crohn’s and still adjusting to the
idea, your social life can be a hurdle. Or is it, the disease is a hurdle to
your social life?
Either way, saying ‘sorry, I can’t come,’ is the most used
sentence in your vocabulary.
My flare up started in June of this year – I’m still not on
medication or have seen a group about handling Crohn’s and for the most part,
I’m handling things on my own.
I can’t tell you how many times I’ve had to say ‘no’ to
going out since June. The amount of 21st’s I’ve missed, the parties,
the lunches, going to the movies, seeing whatever else – I’ve been missing out.
I’ve become withdrawn and alone. I have my family and for
the most part I have my friends; but that’s beginning to thin out.
My friends are 21; they’re young, free, they travel, they
see things…and they go to things. Only my best friend knows of my situation.
And she’s been amazing with everything.
Then today, my friends had coffee. I was not invited. When I
asked my best friend why I wasn’t invited, she said it was because I never went
to anything anymore and that I couldn’t be surprised that she’s giving up.
Yep – that made me cry.
It made me cry a lot.
I retaliated.
I got angry and upset. I told the truth.
I explained how frustrating it was for me, how much I hated
having to tell them ‘no’, how I hated disappointing them and how Crohn’s
Disease is affecting me right now.
I have not heard back from her yet. I’ll let you know what
she says.
But in the meantime I’m upset and hurt.
Hence why I am lying on my bedroom floor, tissues by my side
and eyes like I haven’t slept in days.
I don’t want to be one of those ‘*whinge*, I have Crohn’s
and boohoo me,’ but right now was a time for one of those moments.
I think things will get better after I see the specialist
group at the hospital. Problem is, I don’t know when that will be.
I see the Gastroenterologist on the 11th of this
month – If I haven’t mentioned a thousand times already and hopefully he will
have news about when I see this group.
I’m hoping praying that this tiff with my BF passes
and that not only do we move on and I get invited out more, but that I can
positively say yes when I am invited and not let Crohn’s say ‘no’ when really I
want to jump up and down and say ‘yes’.
If you have Crohn’s or other IBD issues, let me know. I’d
love to hear how you handle a social life and not let your digestive system get
you down!
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